Clinical Expertise
Researchers, doctors, therapists, and institutions who support and accompany individuals with Weaver syndrome on their medical journey
Jill Fahrner, MD, PhD
Clinical Geneticist and Researcher Director, Epigenetics and Chromatin Clinic, Johns Hopkins School of Medicine
Sabine Zuhse-Koch
Orthoptist
Bettina Pauly
Osteopath for children, adolescents, and women
Beate von Eisenhart
Graduate Educator and Physiotherapist
Augenzentren Hamburg
Eye care for all ages
Deutsches Zentrum für Kinder- und Jugendrheumatologie
Gipfelstürmer
Anna Hallmann
Pediatrician specialized in adolescent medicine
Dr. med. Jörg Müller-Scholtz
Specialist in Pediatrics and Adolescent Medicine, Pediatric Cardiologist, Neonatologist
Dr. med. Anna-Katharina Doepfer
Specialist in Orthopedics and Trauma Surgery
Werner Otto Institut
Social Pediatric Center
Haus Mignon
interdisciplinary early childhood intervention
Generous Donors and Dedicated Supporters
Without your support, we wouldn’t be where we are today.
A heartfelt thank you
to all our generous donors!
Connecting individuals with Weaver syndrome and their families, and supporting them with reliable information and compassionate guidance, is something truly close to my heart.
Annabelle Wilckens
Mother to a daughter with Weaver syndrome, initiator of this website, and dedicated advocate for affected individuals